A Bullet List Post

by Alison on May 8, 2012

The weeks are a blur…

  • Grace is having another nasty asthma flare-up, with another steroid burst, but, praise the Lord, she has (just barely) managed to stay out of the hospital this time!
  • I need to get her in with her pulmonologist again
  • It’s rather convenient that the Children’s Respiratory and Critical Care Specialists (the pulmonogy clinic) is located in the same building as the Children’s Oncology Clinic
  • The trick will be to coordinate appointment days & times…
  • Baby Faith had a horrid high temp on Friday & Saturday, she was diagnosed (via chest x-ray) with a viral pneumonia, that was a miserable few days
  • She’s not a fan of neb treatments (it was much easier when she was a baby & just laid there breathing the albuterol, now she fights like a cornered wildcat)
  • I’m not one to run to the doctor every time one of my children runs a little fever
  • but 103+ and obvious misery warranted the trip…
  • She’s doing better now, but still seems rather tight when she coughs
  • Ian goes in for Chemo Round 4 on Thursday
  • Our stove is dying the appliance death, we’re down to 2 burners, the 2 small ones…
  • It would probably bother me more if I was home to cook more often, as it is, the oven still heats the frozen pizzas, so…
  • One day our schedule will slow down
  • I’m almost sure of it :)
  • On therapy days, the warm ones anyway, I take the kids to a park for the 3 hours while Ian is in therapy
  • Hope had a hard fall off the jungle gym yesterday, there was much screaming & crying, so much that I considered calling for help, really, I thought surely she must’ve broken several ribs or something
  • She was fine (thank You, Lord!), not even a sprain, not even a splinter from the woodchips she fell on
  • We discussed the boy who cried wolf, and expressing different levels of emotion for different levels of pain, so that if she ever really gets hurt, I won’t hear the screaming from afar off and think “Oh, it’s just Hope, she probably stubbed her toe…”
  • She’s a character, that girl
  • I gave Mercy a haircut, she still looks cute
  • but the older girls will be going to a stylist to donate their locks soon
  • The Orioles and Hummingbirds are back at the feeders!
  • Our homeschool co-op is having its annual Arts & Academics Fair tonight
  • Our children didn’t prepare anything, no violin performance, no table of projects to display, this homeschool year has been a difficult one, to put it mildly
  • We’ll be attending to cheer on all of their friends!
  • That reminds me, I need to pick up some cookies :)
  • ’cause we all know I’m not gonna get around to baking any today
  • even though the oven still works

eta: Funny, I happened to do a “let’s see what was happening this time last year” peak into the blog archives, and I came across this- Some of Life’s Bullet Points…

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An Open Letter to Local Homeschoolers

by Alison on May 1, 2012

Bark Thank You with Envelope
image source

I want you to know how awesome you are. If nobody’s told you that lately, I’m telling you now.

You’re awesome.

I want to thank you SO MUCH, knowing I could never thank you enough…

The way so many of you, some of you we hardly know, have stepped up to surround our family with love and support, with financial gifts, and with many, many, magnificent meals- You all amaze me.

From the beginning of this hard journey, you’ve been there. You were there with offers of babysitting on surgery day. You were there picking up several children at a time for play days, so I could be at the hospital with Ian. You were there night after night, after crazy hard night, with incredible homemade meals, warm and ready to eat. Thank you.

That pantry blessing? You blessed so much more than our pantry- you blessed our hearts, more than I can say. Thank you.

Your e-mails and text messages have been so encouraging, so often little rays of sunshine, gifts from the Lord, on so many of our long and dreary days, days filled with long drives to the hospital, hard talks with oncologists, and hearts aching and scared. Thank you.

When you rallied together to pay for the van repairs needed to make our long trip to Indiana, before we arrived to pick up our van- we were speechless, well, except for the crying. That gesture rocked us to our core. We were blown away by your generosity, so thankful, so humbled. We were, and still are, so grateful, to God and to you, you blessed community of amazing homeschool families. Thank you.

When we arrived home from Indiana, you were right there, picking up where we left off, with meals, offers of play dates, and best of all, your smiles, and hugs, and friendship at co-op. It’s been so good to connect, and to see your lovely faces these past months when we’ve been able to make it to co-op. Those relationships have been friendly anchors for our children through this time when their lives have been sort of like stormy seas. Thank you.

And those of you who aren’t involved in co-op, but have blessed us with meals, and cards, and love- Thank you. (And we miss spending time with you! Maybe this summer?)

I keep thinking about the Footprints poem, and how these past many months have surely been a time of only one set of footprints in the sand. They’re His footprints, surely, for I know I have not been strong enough to walk through this. I know beyond a shadow of a doubt, that the Lord has been carrying us through this season, and I believe, with all my heart, that He has been using you to do it. The Lord works through His people, and you amazing homeschool families, along with our own families, and our church family- you have been the hands and feet of Jesus to us, and we thank you, so, so, much! Thank you for being vessels, for allowing Him to use you, to work through you, to touch one family, our family. Thank you.

You’re awesome! Because He is awesome!

He’s just so good, isn’t He?!

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Celebrate!

by Alison on April 30, 2012

Colorful Balloons
image source

Celebrating CLEAN SCANS!

It’s been sighs of relief and songs of thanks around here since we got the official word from the radiologist that “Everything looks good!”

Another hurdle cleared. Next scans in around 3 months, at which time he’ll also have another LP (Lumbar Puncture/spinal tap) to check for cancer cells in his cerebral-spinal fluid. (Medulloblastoma is a cancer of the Central Nervous System and has been known to spread throughout the nervous system, including additional metastases in the brain and/or along the spinal column.)

***deep cleansing breath***

Scanxiety is real, for patients and for families.  We’re Christians, we trust the Lord, no matter what, we know everything about our lives is in His very capable hands, and yet it seems nearly impossible to not worry when it comes to scanning to see if the cancer beast has returned.

We  lived our lives just like any other week, just like any other day, going through the usual routines of all the necessary things like eating and sleeping and getting to 101 appointments, all the while scanxiety was brewing underneath.

I suppose it’s just one more part of all this that we still have to get used to.

***deep cleansing breath***

At any rate, it’s over. Another scan done. Another test passed!

And so we keep going, back to another “normal” week of supplements and therapies, of blood draws and exercises, of household chores and some attempt at homeschooling… with NO new tumors!!

A huge Thank You to each and every one of you that offered up prayers on behalf of our Ian. The Body of Christ has been so amazingly real to us these past many months. Your faith, your courage, your encouragement, your hope, it’s just such a blessing to be a part of something so incredible, something so meaningful. Your comments have encouraged, your e-mails have lifted our spirits, your tweets and Facebook likes and comments that have brought smiles to our faces, and all of the thoughts and prayers that we’ll never even know about, they all mean so much, and I just want you to know that we appreciate you!

Thank you so, so, so very much!

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Scan Day

by Alison on April 26, 2012

Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid.
John 14:27

It’s hard not to worry. I’m a mother. Worry comes naturally…

For I the Lord the God will hold thy right hand, saying unto thee, Fear not; I will help thee.
Isaiah 41:13

It’s hard not to keep hearing that doctor’s words, “This is his one shot. If his cancer comes back, he most likely will not survive.” She went on to tell me that they haven’t had a recurrent Medulloblastoma survivor in the 17 years that she’s worked for Children’s oncology.

Be of good courage, and he shall strengthen your heart, all ye that hope in the Lord.
Psalm 31:24

Clean scans, that’s what we’re praying for, clean scans!

For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.
2 Timothy 1:7

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We Had One of Those Weeks

April 22, 2012 Uncategorized

Warning: Seriously long post with no pictures. Bear with me… Three Mondays ago, I started another week by bringing Ian down to Children’s in Minneapolis for another round of chemo (Round 3). IT Guy had the day off, so he stayed home with the other 7 children, including Baby Faith, who is fully weaned and a champ [...]

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Was It a Morning Like This?

April 8, 2012 Sunday Hymn
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An April Monday

April 2, 2012 Multitude Monday

Another weekend wrapped up. Another Monday here. Another round of chemo for Ian. Another round of stomach bug at home. Another chance to give thanks, in every situation… 801. grass greening up early in Minnesota 802. a flurry of bird activity at the feeders 803. children smiling wide on swings 804. spring breezes tossling little [...]

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Near to the Heart of God

April 1, 2012 Sunday Hymn

Near to the Heart of God words and music by Cleland B. McAfee There is a place of quiet rest, near to the heart of God; a place where sin cannot molest, near to the heart of God. O Jesus, blest Redeemer, sent from the heart of God, hold us who wait before thee near [...]

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