Our dishwasher broke well over a year ago. We’re a family of 10, and even with only 9 of us actually eating solid foods from actual plates (Baby Faith is still exclusively breast-fed), we go through a small mountain of dishes each day. Throw in some baking, and maybe an extra snack, and it’s more of an entire range of mountains, and their foothills.
It’s not a big deal, people have lived for a whole lotta years without automatic dishwashers, but we all know that it doesn’t take us very long to get spoiled by convenience and/or anything that makes our job easier. I really liked that old appliance. We got it not long after moving in here 10 yrs ago. The dishwasher was the first thing to die, like the week after we moved in, which was funny after the washing machine died the week after we moved into our previous home, and we started to feel a bit cursed in the appliance department. The fridge that came with the house made this incredible there’s-a-jet-taking-off-in-your-kitchen sound every time the motor kicked in, to the point where it was startling guests… so when the dishwasher died, we decided to go for broke (ha, not quite literally, but we did finance the appliances, Dave Ramsey would NOT have approved, we know better now, I hope) and we got all new, all matching, all trendy, stainless steel appliances.
Including a really sleek dishwasher.
That died, twice.*
Ian has been the main dishwasher for years, and when the dishwasher broke (again, we can only pour so much money into one old appliance, kwim?), Ian transitioned back to handwashing without complaining. Really. I mean, what kind of kid doesn’t complain about handwashing mountains of dishes?
Our Ian, that’s what kind of kid.
Oh, sure, we’d get a sigh here and there, and I had to nag remind him to get to it some days when they were piling up and I was getting impatient, but really, he didn’t complain. He just did the job. And when we’d pull a not-really-clean cup out of the cupboard, and point out the less-than-spotless-ness to him, he’d offer up a bit of a sheepish “Ooops, sorry” and he’d rewash it, and get it clean.
Ian isn’t washing any dishes these days.
As I filled the sink with hot soapy water the other night, my tears began to flow uncontrollably. My throat felt so sore as it tightened as I sobbed one of those therapeutic cries, one of those I’ve-been-holding-it-in-too-long cries. I was a blubbering mess.
I cried because I had to do the dishes.
I cried because I had to do them. I had to do them, because he wasn’t here, and it wasn’t because he was away at summer camp like he had planned.
He wasn’t here that night, and he wasn’t here last night, and we really don’t know how many more nights it will be before he will be back home with us, and this is all just breaking my mom-heart.
This. Is. So. Hard.
Two weeks ago, we were nervous about an upcoming surgery. We were still reeling from the discovery that our oldest son had a brain tumor. I mean, who does that happen to?! We were nervous, yes, but we were also optimistic. Now, we’re reeling from the drastic and damaging effects of the surgery, sobered by the struggle he is going through, nervous about the extent to which he will be able to recover. Praying for a full recovery, but knowing that there are no guarantees. Knowing that He not only hears, but answers every prayer, but also knowing that He doesn’t always answer those prayers the way we want Him to.
How can the world as we know it change so quickly?
How can one prepare for something like that?
People have commented on my faith and my strength, and I just keep thinking about how it’s in my weakness that He is made strong, and how true it is that any strength I have, or that it appears that I have, is only Him, only His grace, because it sure isn’t me. Me, I’m weak, oh, so very weak, and I’m pretty sure that if it weren’t for the grace of God that I wouldn’t even be able to hold my head up during this trial, much less stand.
But thou, O LORD, art a shield for me; my glory, and the lifter of mine head.
Psalm 3:3
I knew by Sunday afternoon that this was going to be a hard week. Ian seems to have lost his energetic let’s-get-this-rehab-show-on-the-road sparkle. He’s exhuasted, he’s having increased headaches and neck pain, he’s struggling with dizziness, he’s still having vision problems, speech is just plain hard for him, and even eating and drinking seem like chores now.
Yesterday’s lumbar puncture/spinal tap was bumped to today. The precautionary extra CT (that I’m so glad they did) looked good, so at least we know that his headaches aren’t from any ventricular or intra-cranial pressure issues. IT Guy and I have to meet with the radiation team for “the radiation talk” this afternoon- that will be a heavy conversation, one of those this-is-becoming-more-real-every-hour kind of conversations. Then, tomorrow Ian will have “radiation simulation”, where, I guess he’ll get fitted with a special mask of some sort that will keep his head in the same exact place each time. If all is looking good, medically speaking (because none of this actually looks good, kwim?!), he’s probably going to be starting radiation next Monday.
{Deep breath}
In the meantime, I will be doing as much reading as I can on the natural and nutritional things we can do to be supporting his body through this. Things like supporting the liver and kidneys as they get hit with toxic loads of nasty chemicals. They have an integrative medicine doctor at Children’s, and one of the oncology docs is very interested in integrative medicine and very supportive of parents wanting to support and cleanse the body as naturally as possible through this process. I was super excited to learn that.
Ok, I have 101 things to do in the next few minutes before I run out the door.
Thank again for all of your prayers! Please remember the LP procedure today, we’re praying that it’s CLEAN and that there are no complications with sedation. Thank you!
*after the local homeschoolers came together to bless our socks off by paying for our van repairs last week, my husband wants to be sure that y’all understand that this is not a plea for a new dishwasher! We’d be happy to have the old one back, the tall and lanky one, not even the stainless steel one!










{ 24 comments… read them below or add one }
Ali, I’m having trouble responding to your entries due to our lack of internet service but I wanted to say that i pray for you and Ian and your family every day. But for the grace of God, we could be walking this same road. Thank you for sharing your heart with all of us. Praying for a clean Lp today!
I have seen some good looking dishwashers at the Salvation Army for $15. The automatic kind, not the tall, good looking kid kind! Praying that your get your “dishwasher” back soon!
I continue to pray for Ian & your family. Please know that there are many, many prayers being raised. God’s Blessings.
There’s not much else I can say but that I’m still praying for all of you. Hard. I can’t imagine the pain and shock that must be running through your family, yet you’re still leaning on the Lord. I love each and every one of you, even though I’ve never met you. My heart is hurting for your family, but rejoicing that we have an Almighty God that provides strength and healing. Thank you so much for your vulnerability on here. I wish I could do something more, but you have my prayers…daily, sometimes hourly.
My daughters and I are praying for your entire family. Hope the LP goes ok and everything is clear. May God give you the strength you will need throughout this journey.
I find myself sitting her nodding my head off… yes, his strength will hold you. In the first days after my daughter was diagnosed, I remember praying for the peace that surpasses all understanding. Loads of it. And I got it. I got so much I got giggly and silly. I remember telling my husband “I think I must be drunk on the spirit.” lol! He never left me. It hurt, but he was there. He was my comfort and strength. God delivers. He does. I hear in your words and heartache the echo of my own. Praying for you… knowing this battle, knowing how God cares for HIS children, big and small.
“It hurt, but he was there.” Exactly.
I’ve hurt more in the past 2 weeks than ever before, all put together, and yet there is peace, because as I hurt more, He ministers more… there is more grace for our greater need… He is so good!
Praying right now. I’m thinking the lumbar puncture should be done by now. That picture of you at Children’s brought some heavy duty tears to my eyes. I can remember pushing my Samuel over to those windows and staring out — watching the people drive by and wondering if they realized how blessed normal was. It’s a surreal and hard place to be. You are a strong, strong woman.
Sweet blogging friend, I am praying for great results today. And that normal and health returns to your family. And that Ian’s body is restored.
May God hold you close. Tight close.
And know that you are surrounded in prayer.
Rachel
“That Ian’s body is resored.” Yes!! That is my biggest prayer right now! Cancer, schmancer, it’s this posterior fossa syndrome that is so heartbreaking right now! He walked in there a fully-functioning, normal-functioning, energetic teenage boy, and now…
{deep breath}
Thank you SO much for your prayers!
I have no words for you except a big thank you for continuing to blog and let us walk this journey with you. Thank you for answering tweets and just for being yourself. Blessings and prayers.
Thank YOU, for journeying with me, and for your prayers, and for your generosity. I thought of you, and thanked the Lord for you, when I filled up the gas tank again today!
Ali, I am blessed every time I come here. I’m one of those people who think you’re amazingly strong. And I will still say it. You are strong enough to show your weakness. The Lord is using you to show His glory and you are letting him. Praise His glorious Name!!!
I’ll keep praying for that dishwasher of yours to come home soon.
Praise His glorious name, indeed! His grace truly is sufficient, thank you for your prayers!
My heart is burdened for you all. You and Ian and all your family are continuously in my prayers!
Thank you so much for your prayers!
Is Ian at Children’s in Minneapolis? I found your blog through Spunky Homeschool. We homeschool our 6 children in Colorado. But we are heading to MN in two days. My 5 year old nephew was just diagnosed with stage 4 Rhabdomysarcoma. He is at Children’s right now too. 7th floor. Oncology. Praying for your family and son. Will look you up when we get there.
Wow, the world just keeps getting smaller, doesn’t it?
So sorry about your nephew… (Does his name happen to be John?)
Genesis Frerotte.
http://www.caringbridge.org/visit/genesisfrerotte
He came to the hospital Monday to put in his g-tube and was supposed to go home Tuesday but now has fever and they are very worried about his airway. Radiation has caused so much damage to his throat he is having a hard time breathing and they had to delay his last three radiation treatments. Chemo is delayed too….
We leave tomorrow. Wondering how we will entertain and feed six children in a hospital….
Praying for you family. For grace and strength for each moment.
You might want to ask the nurses about a Josh Lord? We were with Genesis a few weeks ago in the hospital and I met his mother. She is a homeschooling mother of 10 and her fifth child has stage 4 Leukemia. Josh is sixteen, I believe? I cannot remember her name. But it might be worth asking about.
Praying for your big dish washer!!! I know how those emotions suddenly surface out of no where. It’s good that you had a good cry…it’s good to. May God continue to grant you wisdom, strength and courage to walk this journey. I am praying for all of you.
God has us on an unexpected and unplanned journey also, my sweet 47 year old hubs has Alzheimer’s disease. But during all of this I am amazed at God’s blessings along the way. He is faithful in our weakness!
I’m not real sure how I got to your blog… But I wanted to thank you for your words.
I’m 26… Getting married in 7 weeks.. Was diagnosed with cancer two months ago, and have a mom that probably feels a lot like you do. Ian’s a little younger then me, but from the way you talk about him, i think we’d get along.
I’d love to send Ian a letter if that’s possible. I got a lot of letters from people when I was diagnosed, but for whatever reason, it helped to hear from people that could relate to exactly what I’m going through. Let me know if that’s possible.
We continue to pray for Ian and your family. May God’s love and strength continue to carry you through this. He is with Ian, you, your family, and the doctors all the time.
Thank you for taking the time to update us–it means so much to be able to share this journey and pray for specific needs.
Sending love and lifting prayers,
Michelle
Continuing in daily prayer for Ian and your family …
Ali,
This is Kathy RN from the Pelvic Floor Center / CRSAL, where we really miss Dave’s expertise with our technical support! You have all been in our daily thought’s and prayers! I cannot imagine the stress and heart ache watching your little boy go through all of this! From your words in this blog Ian certainly sounds like quite a wonderful kid! Please tell him he is a hero in our eyes! If there is anything we can do to help or support you please do not hesitate to let us know. Sending hugs your way! Kathy