Keeping 6 other children cared for and occupied while I’ve been at the hospital with Ian and my sweet Baby Faith has been a challenge, but we’re all hanging in there…
My younger sisters, who both live nearby (we’re SO blessed to have family so close!), have been so gracious, and pretty brave. I mean, not everyone could handle several extra children AND several open bottles of paint in their house at the same time…
Our 6 others have had some fun days at various friends’ farms, trips to the zoo with friends from church, and days playing with their younger cousins. To them, the past couple weeks have been pretty fun, and I’m glad that they’ve had the distractions. Mega thank you’s to all of you locals who have been stepping up and stepping in to such and incredible help at this time. I can’t thank you enough, it’s been such a blessing to not be filled with anxiety over the rest of the children, but to just be able to trust that they’re in great hands, and to be able to focus on what’s been happening with Ian…
The LP looked good, they said “reactive non-malignant”. I guess they saw some residual cells that are to be expected after surgery, but they didn’t see any malignancies, if that makes sense. I guess the pathologist sent if off for a second opinion, and I was told that that could take up to two weeks.
The current issue is that Ian has spiked a fever. Anytime a patient spikes a fever after surgery, infection is a worry. There is the initial surgery sight and his portacath sight, as well as the possibility that he has aspirated… They’ve got 3 IV antibiotics on board, and we’re hoping they can nip this in the bud, whereever it’s coming from!
We discussed the possibility of proton beam therapy rather than traditional radiation, which I will discuss more soon if we go that route.
They are concerned about him not getting in enough nutrition, as eating hasn’t picked up much, and now he’s been in more pain the past few days, he just hasn’t been eating as much. It’s very common for patients being treated for medulloblastoma to require a feeding tube for supplemental feeding, especially as treatment gets rough with all of the nausea, etc… I asked about trying some good natural smoothies and protein shakes for now to get some nutitionally dense goodness into him, rather than some canned formula, and they were fine with that, so I grabbed some good stuff tonight to bring down to start our in-hospital-room smoothie bar tomorrow morning!
He’s going to be seen by the pain management team tomorrow, as we still haven’t been able to manage his pain, especially with his drug sensitivities… I’m really hoping they can find a good route to take with him, as he’s really stalled out on the rehab with feeling so crummy. He didn’t feel good enough for anything today- no occupational therapy, no physical therapy, not even speech therapy. He’s exhausted, in pain, experiencing almost constant dizziness, and has just plain lost his zest.
Prayer requests for Thursday-
that the antibiotics would work quickly to knock out this infection
that Ian could get good sleep, I really think it would help his energy level and overall pain levels
that Ian could get enough good nutrition and not require a feeding tube, at least not yet, seems way too early in the game for that to me…
that we would have wisdom in making treatment decisions, that the Lord would bring the right people with the right knowledge and skill
that Ian could get back to the work of physical therapy, that his body would heal quickly and fully as he retrains his brain to work all of his muscles again
that we could work out a workable schedule to get out homeschooling started up again soon
that the other children would all stay healthy through this late summer allergy season, especially our asthma girls
that the Lord would bless those who have blessed us so!!!