
I get it.
Breast cancer is an insidious monster that needs to be put to death.
My maternal grandmother had breast cancer. 3 of my mom’s 4 sisters have had breast cancer. Several friends have had breast cancer.
I get it. Breast cancer is awful. Huge understatement, I know.
But how can it be that our entire country knows about the pink, thinks about the pink, covers itself in pink every October…
October is Breast Cancer Awareness Month,
but you knew that, right?
and the average person has no idea what the gold ribbon is for.
or what month it is promoted by a small, but passionate, army of advocates, mostly mothers, who, like me, probably didn’t know what the gold ribbon was for either, until their precious son or daughter was diagnosed with a Childhood Cancer.
September is Childhood Cancer Awareness Month,
did you know that?
I didn’t know it until last year, last September, the month after our son’s diagnosis. An aggressive malignant brain tumor. Medulloblastoma. Cancer…
I was surprised that I hadn’t heard about it, the gold ribbon. I mean, I was aware that kids get cancer too, but really, I wasn’t aware…
I wasn’t aware that 46 children are diagnosed with a Childhood Cancer each day in this country. Roughly 1 out of 4 will not survive…
I wasn’t aware that Childhood Cancer kills more children than any other disease, more than Asthma, Cystic Fibrosis, Diabetes and Pediatric AIDS combined.
I wasn’t aware that only 2 new drugs have been approved for pediatric, or Childhood Cancer, in the past 20 years!
I wasn’t aware that 80% of children have metastasized cancer at the time of diagnosis, vs. about 20% of adults.
I wasn’t aware that treatment can continue for several years, depending on the type of cancer.
I wasn’t aware of how little funding there is for Childhood Cancer.
But I’m aware now.
In August of 2011, my oldest son, Ian, was diagnosed with cancer. Medulloblastoma, classic histology, Grade IV, M Stage 0 (localized). Surgery left him with the devastating Posterior Fossa Syndrome.
5 months later, my youngest sister’s little boy, Tenney, was diagnosed with cancer. Wilms Tumor, unfavorable histology/diffuse anaplasia, high-grade, Stage IV (metastasized, distant, in lungs, inoperable, his treatment NEEDS to work).
In August this year, just a few short weeks ago, my friend Sara‘s precious baby Hannah was diagnosed with cancer. Acute Lymphoblastic Leukemia, at 3 1/2 months old…
In September, Ian had a “new area of concern” that was seen as a possible relapse…
A few weeks later, at the beginning of this month, a young boy from Sara’s church, Benjamin Isaac, was diagnosed with cancer. Wilms Tumor, unfavorable histology/diffuse anaplasia, high-grade, Stage II (metastasized, near main tumor, operable, but still highly aggressive).
Also at the beginning of this month, my nephew Tenney, who was a few short weeks away from the end of his treatment plan, was found to be relapsing. His cancer has grown chemo-resistant, and his situation went from scary to HE NEEDS A MIRACLE.
Please pray for Tenney!
And Hannah.
And Benjamin Isaac.
And Ian.
And the other children you know who are currently battling Childhood Cancer.
Pray for their families, for their weary mothers and fathers, for their finances, for their faith…
Pray, pray, pray, and then pray some more…
And consider a gold ribbon next September?










{ 11 comments… read them below or add one }
I wear my gold ribbon all the time.
I hate that you have to know what it’s for. That it’s been placed so squarely in front of you, around you, that you’re swimming in it. I hate that anyone has to know.
I’m with you, and I think you know that. I don’t mean any disrespect to the pink, to those who have faced a battle against breast cancer.
I just want people to know the gold ribbon as well as they know the pink.
Until the day we don’t need either of them.
“Until the day we don’t need either of them.” Amen, and AMEN!
Thanks for making me more aware. Although I wish it were under different circumstances. Your family continues in my prayers.
Praying for all of these precious children. I wish gold ribbons weren’t necessary. Or pediatric oncologists, or PICU’s….
Thank you for this. I wonder if people are so slow to embrace the gold ribbon because it must be the scariest thought in the world and it is just so hard to face it. I’m so sorry you and so many in your life have had to. I do pray for Ian and I will add the others to my list!
God bless–
PS Where can I find a gold ribbon? (besides obviously making my own.)
I wasn’t aware that there was any gold ribbon, much less what it stands for. I’m sure just those details make your path feel that much more lonely. I love knowing that I can pray for you…and the other moms that are traveling your road. My momma heart doesn’t know how anyone could get out of bed apart from the grace and strength of Christ. You inspire me. Your family continually comes to my mind and I lift you up.
Hi Alison,
I am becoming more aware of cancer and all the nasty diseases out there. So many and so little awareness.
Continuing to pray for your family and the ones that you are praying for.
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I so appreciate your blog…although I had breast cancer, I too, have pink fatigue. I personally think there should be a little less awareness and a lot more action. I love that awareness in made through the ribbons, but as your experience with the gold ribbon…I feel that most of it is a product marketing campaign. Pink and women are cute (plus the sexualisation of breasts)…gold and children are frightening. You are experiencing a nightmare…and I pray for God’s healing for Ian and peace for you.
Hi Alison
Praying for all the little ones in your life fighting. How is Ian coping with PFS? So sorry that we have too much in common. I also understand the frustration with the lack of Childhood cancer awareness. It takes mommas like us to spread the word because just a few years ago I was just as clueless. Blessings.
Thanks for spreading the word. Now I’m more aware. I send my best thoughts for all in need.
Thank you for sharing with the rest of us, I had no idea. I don’t know if I’ve ever even seen a gold ribbon – I might have mistaken it for the yellow ribbon?
I’m sorry you have had to walk through this with so many young ones, and ones so very close to you. My dad has leukemia, but I didn’t realize so many children were affected by cancer as well. I will be praying, and obviously must need to be more aware as well.
(I found you through someone else’s blog link to Lisa-Jo’s for 5MinFri.)