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“It’s basically excruciating…” He was referring to the pain in his feet, nerve pain, one of the unpleasant side-effects of the “low-dose” chemotherapy drug Vincristine. And this was supposed to be the easy stuff. Ian received 6 doses of Vincristine, one each week while he was undergoing Proton Therapy. It was the chemo part of [...]
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{Deep cleansing breath} I’ve been parenting a little over 18 yrs (I know, I know, I’m way older than you thought I was). In the grand scheme of things, 2 months is a tiny little drop in the big bucket of time. It’s flown by, and yet it seems like an eternity… 2 months ago [...]
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We’re ready! Them? Not so much… It’s all good, they’re just running over an hour a bit behind, and so we wait patiently to begin this next leg of the journey. It’s sobering, being here ready to start this treatment, this treatment for brain cancer, or more accurately central nervous system cancer, this treatment that [...]
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Did you know that? I didn’t. Until late last night, when someone mentioned it on facebook. I looked it up, sure enough, it is. Believe me, I’m very aware of childhood cancer… Painfully aware. Every day, 36 children are diagnosed with cancer. It’s not like I wasn’t aware of it before, this thing called cancer, [...]
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Two Mondays ago, Ian was supposed to go over to Abbott to get set up for his radiation simulation. He had spiked a really high fever in the night and was still shaking and shuddering so badly that he couldn’t lay still enough for the MRI. They wheeled him back over, saying “Well, we’ll try [...]
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Our dishwasher broke well over a year ago. We’re a family of 10, and even with only 9 of us actually eating solid foods from actual plates (Baby Faith is still exclusively breast-fed), we go through a small mountain of dishes each day. Throw in some baking, and maybe an extra snack, and it’s more [...]
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Posterior Fossa Syndrome is, from what I’ve been told, somewhat of a medical mystery. It sometimes occurs after a surgery in the posterior fossa area of the brain, which includes the cerebellum, which is where Ian’s tumor was. It seems to occur most often when the tumor is a medulloblastoma, which is what Ian’s tumor [...]
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Amazing grace- how sweet the sound- That saved a wretch like me! I once was lost but now am found, Was blind but now I see. ‘Twas grace that taught my heart to fear, And GRACE my fears relieved; How precious did that grace appear The hour I first believed. Thru many dangers, toils, and [...]
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